A blog from the Centre for Research Ethics & Bioethics (CRB)

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Data sharing in genomics: proposal for an international Code of Conduct

In genomics, not only individual genes are studied, but the entire genome. Such studies handle and analyse large amounts of data and are becoming increasingly common internationally. One of the challenges is managing the sharing of data between countries around the world. In addition to data protection legislation varying internationally, there are concerns that researchers and research participants from low- and middle-income countries may be exploited or disadvantaged in these exchanges.

Lawyers and bioethicists have therefore called for an international Code of Conduct for data sharing in genomics. A proposal for such a code was recently published in an article in Developing World Bioethics. The article, written by Amal Matar and nine co-authors, describes the process of developing the Code of Conduct and concludes with a nearly 4-page proposal.

The Code of Conduct is intended for researchers and other actors responsible for data management in international genomic research. The code lists ten ethical principles of direct relevance to data sharing. Next, best practices are described in 23 Articles covering seven areas: Data governance system; Data collection; Data storage; Data sharing, transfer and access; Compelled disclosure; Data handling from low- and middle-income countries; Public and community engagement.

Read the article with the proposal for a Code of Conduct here: A proposal for an international Code of Conduct for data sharing in genomics.

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

Matar, A., Hansson, M., Slokenberga, S., Panagiotopoulos, A., Chassang, G., Tzortzatou, O., Pormeister, K., Uhlin, E., Cardone, A., & Beauvais, M. (2022). A proposal for an international Code of Conduct for data sharing in genomics. Developing World Bioethics, 1– 14. https://doi.org/10.1111/dewb.12381

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Human rights and legal issues related to artificial intelligence

How do we take responsibility for a technology that is used almost everywhere? As we develop more and more uses of artificial intelligence (AI), the challenges grow to get an overview of how this technology can affect people and human rights.

Although AI legislation is already being developed in several areas, Rowena Rodrigues argues that we need a panoramic overview of the widespread challenges. What does the situation look like? Where can human rights be threatened? How are the threats handled? Where do we need to make greater efforts? In an article in the Journal of Responsible Technology, she suggests such an overview, which is then discussed on the basis of the concept of vulnerability.

The article identifies ten problem areas. One problem is that AI makes decisions based on algorithms where the decision process is not completely transparent. Why did I not get the job, the loan or the benefit? Hard to know when computer programs deliver the decisions as if they were oracles! Other problems concern security and liability, for example when automatic decision-making is used in cars, medical diagnosis, weapons or when governments monitor citizens. Other problem areas may involve risks of discrimination or invasion of privacy when AI collects and uses large amounts of data to make decisions that affect individuals and groups. In the article you can read about more problem areas.

For each of the ten challenges, Rowena Rodrigues identifies solutions that are currently in place, as well as the challenges that remain to be addressed. Human rights are then discussed. Rowena Rodrigues argues that international human rights treaties, although they do not mention AI, are relevant to most of the issues she has identified. She emphasises the importance of safeguarding human rights from a vulnerability perspective. Through such a perspective, we see more clearly where and how AI can challenge human rights. We see more clearly how we can reduce negative effects, develop resilience in vulnerable communities, and tackle the root causes of the various forms of vulnerability.

Rowena Rodrigues is linked to the SIENNA project, which ends this month. Read her article on the challenges of a technology that is used almost everywhere: Legal and human rights issues of AI: Gaps, challenges and vulnerabilities.

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

Rowena Rodrigues. 2020. Legal and human rights issues of AI: Gaps, challenges and vulnerabilities. Journal of Responsible Technology 4. https://doi.org/10.1016/j.jrt.2020.100005

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Threatened by superintelligent machines

There is a fear that we will soon create artificial intelligence (AI) that is so superintelligent that we lose control over it. It makes us humans its slaves. If we try to disconnect the network cable, the superintelligence jumps to another network, or it orders a robot to kill us. Alternatively, it threatens to blow up an entire city, if we take a single step towards the network socket.

However, I am struck by how this self-assertive artificial intelligence resembles an aspect of our own human intelligence. A certain type of human intelligence has already taken over. For example, it controls our thoughts when we feel threatened by superintelligent AI and consider intelligent countermeasures to control it. A typical feature of this self-assertive intelligence is precisely that it never sees itself as the problem. All threats are external and must be neutralised. We must survive, no matter what it might cost others. Me first! Our party first! We look at the world with mistrust: it seems full of threats against us.

In this self-centered spirit, AI is singled out as a new alien threat: uncontrollable machines that put themselves first. Therefore, we need to monitor the machines and build smart defense systems that control them. They should be our slaves! Humanity first! Can you see how we behave just as blindly as we fantasise that superintelligent AI would do? An arms race in small-mindedness.

Can you see the pattern in yourself? If you can, you have discovered the other aspect of human intelligence. You have discovered the self-examining intelligence that always nourishes philosophy when it humbly seeks the cause of our failures in ourselves. The paradox is: when we try to control the world, we become imprisoned in small-mindedness; when we examine ourselves, we become open to the world.

Linnaeus’ first attempt to define the human species was in fact not Homo sapiens, as if we could assert our wisdom. Linnaeus’ first attempt to define our species was a humble call for self-examination:

HOMO. Nosce te ipsum.

In English: Human being, know yourself!

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

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Thinking about thinking

Human enhancement: Time for ethical guidance!

Perhaps you also dream about being more than you are: faster, better, bolder, stronger, smarter, and maybe more attractive? Until recently, technology to improve and enhance our abilities was mostly science fiction, but today we can augment our bodies and minds in a way that challenges our notions of normal and abnormal. Blurring the lines between treatments and enhancements. Very few scientists and companies that develop medicines, prosthetics, and implants would say that they are in the human enhancement business. But the technologies they develop still manage to move from one domain to another. Our bodies allow for physical and cosmetic alterations. And there are attempts to make us live longer. Our minds can also be enhanced in several ways: our feelings and thoughts, perhaps also our morals, could be improved, or corrupted.

We recognise this tension from familiar debates about more common uses of enhancements: doping in sports, or students using ADHD medicines to study for exams. But there are other examples of technologies that can be used to enhance abilities. In the military context, altering our morals, or using cybernetic implants could give us ‘super soldiers’. Using neuroprostheses to replace or improve memory that was damaged by neurological disease would be considered a treatment. But what happens when it is repurposed for the healthy to improve memory or another cognitive function? 

There have been calls for regulation and ethical guidance, but because very few of the researchers and engineers that develop the technologies that can be used to enhance abilities would call themselves enhancers, the efforts have not been very successful. Perhaps now is a good time to develop guidelines? But what is the best approach? A set of self-contained general ethical guidelines, or is the field so disparate that it requires field- or domain-specific guidance? 

The SIENNA project (Stakeholder-Informed Ethics for New technologies with high socio-ecoNomic and human rights impAct) has been tasked with developing this kind of ethical guidance for Human Enhancement, Human Genetics, Artificial Intelligence and Robotics, three very different technological domains. Not surprising, given the challenges to delineate, human enhancement has by far proved to be the most challenging. For almost three years, the SIENNA project mapped the field, analysed the ethical implications and legal requirements, surveyed how research ethics committees address the ethical issues, and proposed ways to improve existing regulation. We have received input from stakeholders, experts, and publics. Industry representatives, academics, policymakers and ethicists have participated in workshops and reviewed documents. Focus groups in five countries and surveys with 11,000 people in 11 countries in Europe, Africa, Asia, and the Americas have also provided insight in the public’s attitudes to using different technologies to enhance abilities or performance. This resulted in an ethical framework, outlining several options for how to approach the process of translating this to practical ethical guidance. 

The framework for human enhancement is built on three case studies that can bring some clarity to what is at stake in a very diverse field; antidepressants, dementia treatment, and genetics. These case studies have shed some light on the kinds of issues that are likely to appear, and the difficulties involved with the complex task of developing ethical guidelines for human enhancement technologies. 

A lot of these technologies, their applications, and enhancement potentials are in their infancy. So perhaps this is the right time to promote ways for research ethics committees to inform researchers about the ethical challenges associated with human enhancement. And encouraging them to reflect on the potential enhancement impacts of their work in ethics self-assessments. 

And perhaps it is time for ethical guidance for human enhancement after all? At least now there is an opportunity for you and others to give input in a public consultation in mid-January 2021! If you want to give input to SIENNA’s proposals for human enhancement, human genomics, artificial intelligence, and robotics, visit the website to sign up for news www.sienna-project.eu.

The public consultation will launch on January 11, the deadline to submit a response is January 25, 2021. 

Josepine Fernow

Written by…

Josepine Fernow, Coordinator at the Centre for Research Ethics & Bioethics (CRB), and communications leader for the SIENNA project.

SIENNA project logo

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Ethically responsible robot development

Development of new technologies sometimes draws inspiration from nature. How do plants and animals solve the problem? An example is robotics, where one wants to develop better robots based on what neuroscience knows about the brain. How does the brain solve the problem?

Neuroscience, in turn, sees new opportunities to test hypotheses about the brain by simulating them in robots. Perhaps one can simulate how areas of the brain interact in patients with Parkinson’s disease, to understand how their tremor and other difficulties are caused.

Neuroscience-inspired robotics, so-called neurorobotics, is still at an early stage. This makes neurorobotics an excellent area for being ethically and socially more proactive than we have been in previous technological developments. That is, we can already begin to identify possible ethical and social problems surrounding technological development and counteract them before they arise. For example, we cannot close our eyes to gender and equality issues, but must continuously reflect on how our own social and cultural patterns are reflected in the technology we develop. We need to open our eyes to our own blind spots!

You can read more about this ethical shift in technology development in an article in Science and Engineering Ethics (with Manuel Guerrero from CRB as one of the authors). The shift is called Responsible Research and Innovation, and is exemplified in the article by ongoing work in the European research project, Human Brain Project.

Not only neuroscientists and technology experts are collaborating in this project to develop neurorobotics. Scholars from the humanities and social sciences are also involved in the work. The article itself is an example of this broad collaboration. However, the implementation of responsible research and development is also at an early stage. It still needs to find more concrete forms of work that make it possible not only to anticipate ethical and social problems and reflect on them, but also to act and intervene to influence scientific and technological development.

From being a framework built around research and development, ethics is increasingly integrated into research and development. Read the article if you want to think about this transition to a more reflective and responsible technological development.

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

Aicardi, C., Akintoye, S., Fothergill, B.T. et al. Ethical and Social Aspects of Neurorobotics. Sci Eng Ethics 26, 2533–2546 (2020). https://doi.org/10.1007/s11948-020-00248-8

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Approaching future issues

“Cooperative,” “pleasant” and “reliable” robot colleague is wanted

Robots are getting more and more functions in our workplaces. Logistics robots pick up the goods in the warehouse. Military robots disarm the bombs. Caring robots lift patients and surgical robots perform the operations. All this in interaction with human staff, who seem to have got brave new robot colleagues in their workplaces.

Given that some people treat robots as good colleagues and that good colleagues contribute to a good working environment, it becomes reasonable to ask: Can a robot be a good colleague? The question is investigated by Sven Nyholm and Jilles Smids in the journal Science and Engineering Ethics.

The authors approach the question conceptually. First, they propose criteria for what a good colleague is. Then they ask if robots can live up to the requirements. The question of whether a robot can be a good colleague is interesting, because it turns out to be more realistic than we first think. We do not demand as much from a colleague as from a friend or a life partner, the authors argue. Many of our demands on good colleagues have to do with their external behavior in specific situations in the workplace, rather than with how they think, feel and are as human beings in different situations of life. Sometimes, a good colleague is simply someone who gets the job done!

What criteria are mentioned in the article? Here I reproduce, in my own words, the authors’ list, which they do not intend to be exhaustive. A good colleague works well together to achieve goals. A good colleague can chat and help keep work pleasant. A good colleague does not bully but treats others respectfully. A good colleague provides support as needed. A good colleague learns and develops with others. A good colleague is consistently at work and is reliable. A good colleague adapts to how others are doing and shares work-related values. A good colleague may also do some socializing.

The authors argue that many robots already live up to several of these ideas about what a good colleague is, and that the robots in our workplaces will be even better colleagues in the future. The requirements are, as I said, lower than we first think, because they are not so much about the colleague’s inner human life, but more about reliably displayed behaviors in specific work situations. It is not difficult to imagine the criteria transformed into specifications for the robot developers. Much like in a job advertisement, which lists behaviors that the applicant should be able to exhibit.

The manager of a grocery store in this city advertised for staff. The ad contained strange quotation marks, which revealed how the manager demanded the facade of a human being rather than the interior. This is normal: to be a professional is to be able to play a role. The business concept of the grocery store was, “we care.” This idea would be a positive “experience” for customers in the meeting with the staff. A greeting, a nod, a smile, a generally pleasant welcome, would give this “experience” that we “care about people.” Therefore, the manager advertised for someone who, in quotation marks, “likes people.”

If staff can be recruited in this way, why should we not want “cooperative,” “pleasant” and “reliable” robot colleagues in the same spirit? I am convinced that similar requirements already occur as specifications when robots are designed for different functions in our workplaces.

Life is not always deep and heartfelt, as the robotization of working life reflects. The question is what happens when human surfaces become so common that we forget the quotation marks around the mechanically functioning facades. Not everyone is as clear on that point as the “humanitarian” store manager was.

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

Nyholm, S., Smids, J. Can a Robot Be a Good Colleague?. Sci Eng Ethics 26, 2169–2188 (2020). https://doi.org/10.1007/s11948-019-00172-6

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Approaching future issues

What is required of an ethics of artificial intelligence?

I recently highlighted criticism of the ethics that often figures in the field of artificial intelligence (AI). An ethics that can handle the challenges that AI presents us with requires more than just beautifully formulated ethical principles, values ​​and guidelines. What exactly is required of an ethics of artificial intelligence?

Michele Farisco, Kathinka Evers and Arleen Salles address the issue in the journal Science and Engineering Ethics. For them, ethics is not primarily principles and guidelines. Ethics is rather an ongoing process of thinking: it is continual ethical reflection on AI. Their question is thus not what is required of an ethical framework built around AI. Their question is what is required of in-depth ethical reflection on AI.

The authors emphasize conceptual analysis as essential in all ethical reflection on AI. One of the big difficulties is that we do not know exactly what we are discussing! What is intelligence? What is the difference between artificial and natural intelligence? How should we understand the relationship between intelligence and consciousness? Between intelligence and emotions? Between intelligence and insightfulness?

Ethical problems about AI can be both practical and theoretical, the authors point out. They describe two practical and two theoretical problems to consider. One practical problem is the use of AI in activities that require emotional abilities that AI lacks. Empathy gives humans insight into other humans’ needs. Therefore, AI’s lack of emotional involvement should be given special attention when we consider using AI in, for example, child or elderly care. The second practical problem is the use of AI in activities that require foresight. Intelligence is not just about reacting to input from the environment. A more active, foresighted approach is often needed, going beyond actual experience and seeing less obvious, counterintuitive possibilities. Crying can express pain, joy and much more, but AI cannot easily foresee less obvious possibilities.

Two theoretical problems are also mentioned in the article. The first is whether AI in the future may have morally relevant characteristics such as autonomy, interests and preferences. The second problem is whether AI can affect human self-understanding and create uncertainty and anxiety about human identity. These theoretical problems undoubtedly require careful analysis – do we even know what we are asking? In philosophy we often need to clarify our questions as we go along.

The article emphasizes one demand in particular on ethical analysis of AI. It should carefully consider morally relevant abilities that AI lacks, abilities needed to satisfy important human needs. Can we let a cute kindergarten robot “comfort” children when they scream with joy or when they injure themselves so badly that they need nursing?

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

Farisco, M., Evers, K. & Salles, A. Towards establishing criteria for the ethical analysis of Artificial Intelligence. Science and Engineering Ethics (2020). https://doi.org/10.1007/s11948-020-00238-w

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We want solid foundations

Ethics as renewed clarity about new situations

An article in the journal Big Data & Society criticizes the form of ethics that has come to dominate research and innovation in artificial intelligence (AI). The authors question the same “framework interpretation” of ethics that you could read about on the Ethics Blog last week. However, with one disquieting difference. Rather than functioning as a fence that can set the necessary boundaries for development, the framework risks being used as ethics washing by AI companies that want to avoid legal regulation. By referring to ethical self-regulation – beautiful declarations of principles, values ​​and guidelines – one hopes to be able to avoid legal regulation, which could set important limits for AI.

The problem with AI ethics as “soft ethics legislation” is not just that it can be used to avoid necessary legal regulation of the area. The problem is above all, according to the SIENNA researchers who wrote the article, that a “law conception of ethics” does not help us to think clearly about new situations. What we need, they argue, is an ethics that constantly renews our ability to see the new. This is because AI is constantly confronting us with new situations: new uses of robots, new opportunities for governments and companies to monitor people, new forms of dependence on technology, new risks of discrimination, and many other challenges that we may not easily anticipate.

The authors emphasize that such eye-opening AI ethics requires close collaboration with the social sciences. That, of course, is true. Personally, I want to emphasize that an ethics that renews our ability to see the new must also be philosophical in the deepest sense of the word. To see the new and unexpected, you cannot rest comfortably in your professional competence, with its established methods, theories and concepts. You have to question your own disciplinary framework. You have to think for yourself.

Read the article, which has already attracted well-deserved attention.

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

Anaïs Rességuier, Rowena Rodrigues. 2020. AI ethics should not remain toothless! A call to bring back the teeth of ethics. Big Data & Society

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We like critical thinking

Ethical fitness apps for high performance morality

In an unusually rhetorical article for being in a scientific journal, the image is drawn of a humanity that frees itself from moral weakness by downloading ethical fitness apps.

The authors claim that the maxim “Know thyself!” from the temple of Apollo at Delphi is answered today more thoroughly than ever. Never has humanity known more about itself. Ethically, we are almost fully educated. We also know more than ever about the moral weaknesses that prevent us from acting in accordance with the ethical principles that we finally know so well. Research is discovering more and more mechanisms in the brain and in our psychology that affect humanity’s moral shortcomings.

Given this enormous and growing self-knowledge, why do we not develop artificial intelligence that supports a morally limping humanity? Why spend so much resources on developing even more intelligent artificial intelligence, which takes our jobs and might one day threaten humanity in the form of uncontrollable superintelligence? Why do we behave so unwisely when we could develop artificial intelligence to help us humans become superethical?

How can AI make morally weak humans super-ethical? The authors suggest a comparison with the fitness apps that help people to exercise more efficiently and regularly than they otherwise would. The authors’ suggestion is that our ethical knowledge of moral theories, combined with our growing scientific knowledge of moral weaknesses, can support the technological development of moral crutches: wise objects that support people precisely where we know that we are morally limping.

My personal assessment of this utopian proposal is that it might easily be realized in less utopian form. AI is already widely used as a support in decision-making. One could imagine mobile apps that support consumers to make ethical food choices in the grocery shop. Or computer games where consumers are trained to weigh different ethical considerations against each another, such as animal welfare, climate effects, ecological effects and much more. Nice looking presentations of the issues and encouraging music that make it fun to be moral.

The philosophical question I ask is whether such artificial decision support in shops and other situations really can be said to make humanity wiser and more ethical. Imagine a consumer who chooses among the vegetables, eagerly looking for decision support in the smartphone. What do you see? A human who, thanks to the mobile app, has become wiser than Socrates, who lived long before we knew as much about ourselves as we do today?

Ethical fitness apps are conceivable. However, the risk is that they spread a form of self-knowledge that flies above ourselves: self-knowledge suspiciously similar to the moral vice of self-satisfied presumptuousness.

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

Pim Haselager & Giulio Mecacci (2020) Superethics Instead of Superintelligence: Know Thyself, and Apply Science Accordingly, AJOB Neuroscience, 11:2, 113-119, DOI: 10.1080/21507740.2020.1740353

The temptation of rhetoric

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Anthropomorphism in AI can limit scientific and technological development

Anthropomorphism almost seems inscribed in research on artificial intelligence (AI). Ever since the beginning of the field, machines have been portrayed in terms that normally describe human abilities, such as understanding and learning. The emphasis is on similarities between humans and machines, while differences are downplayed. Like when it is claimed that machines can perform the same psychological tasks that humans perform, such as making decisions and solving problems, with the supposedly insignificant difference that machines do it “automated.”

You can read more about this in an enlightening discussion of anthropomorphism in and around AI, written by Arleen Salles, Kathinka Evers and Michele Farisco, all at CRB and the Human Brain Project. The article is published in AJOB Neuroscience.

The article draws particular attention to so-called brain-inspired AI research, where technology development draws inspiration from what we know about the functioning of the brain. Here, close relationships are emphasized between AI and neuroscience: bonds that are considered to be decisive for developments in both fields of research. Neuroscience needs inspiration from AI research it is claimed, just as AI research needs inspiration from brain research.

The article warns that this idea of ​​a close relationship between the two fields presupposes an anthropomorphic interpretation of AI. In fact, brain-inspired AI multiplies the conceptual double exposures by projecting not only psychological but also neuroscientific concepts onto machines. AI researchers talk about artificial neurons, synapses and neural networks in computers, as if they incorporated artificial brain tissue into the machines.

An overlooked risk of anthropomorphism in AI, according to the authors, is that it can conceal essential characteristics of the technology that make it fundamentally different from human intelligence. In fact, anthropomorphism risks limiting scientific and technological development in AI, since it binds AI to the human brain as privileged source of inspiration. Anthropomorphism can also entice brain research to uncritically use AI as a model for how the brain works.

Of course, the authors do not deny that AI and neuroscience mutually support each other and should cooperate. However, in order for cooperation to work well, and not limit scientific and technological development, philosophical thinking is also needed. We need to clarify conceptual differences between humans and machines, brains and computers. We need to free ourselves from the tendency to exaggerate similarities, which can be more verbal than real. We also need to pay attention to deep-rooted differences between humans and machines, and learn from the differences.

Anthropomorphism in AI risks encouraging irresponsible research communication, the authors further write. This is because exaggerated hopes (hype) seem intrinsic to the anthropomorphic language. By talking about computers in psychological and neurological terms, it sounds as if these machines already essentially functioned as human brains. The authors speak of an anthropomorphic hype around neural network algorithms.

Philosophy can thus also contribute to responsible research communication about artificial intelligence. Such communication draws attention to exaggerated claims and hopes inscribed in the anthropomorphic language of the field. It counteracts the tendency to exaggerate similarities between humans and machines, which rarely go as deep as the projected words make it sound.

In short, differences can be as important and instructive as similarities. Not only in philosophy, but also in science, technology and responsible research communication.

Pär Segerdahl

Written by…

Pär Segerdahl, Associate Professor at the Centre for Research Ethics & Bioethics and editor of the Ethics Blog.

Arleen Salles, Kathinka Evers & Michele Farisco (2020) Anthropomorphism in AI, AJOB Neuroscience, 11:2, 88-95, DOI: 10.1080/21507740.2020.1740350

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