The Ethics Blog

A blog from the Centre for Research Ethics & Bioethics (CRB)

Tag: samples (Page 1 of 4)

Broad and deep consent for biobanks

A new article on consent for biobanks manages to surprise me. How? By pointing out what ought to be obvious! If we want to judge what kind of consent works best for biobanks, then we should look at today’s biobanks and not look back at more traditional medical research. The risks in traditional medical research […]

In-depth critique of dynamic consent

Biobanks are getting bigger and the human biological samples that are stored in the freezers have increasingly long-term utility for research. The samples can be used not only in one study, but also in several different studies. Not only in today’s research, but also in future research. This creates research ethical tensions. Ethics requires that […]

Global data sharing, national oversight bodies

Science has an international character and global research collaboration is common. For medical research, this means that health data and biological samples linked to people in one nation often are transferred to researchers in other nations. At the same time, the development of new information and communication technology increases the importance of people’s data protection […]

Acknowledging the biobank and the people who built it

Biomedical research increasingly often uses biological material and information collected in biobanks. In order for a biobank to work efficiently, it is important not only that the biological material is stored well. The material must also be made available to science so that researchers easily and responsibly can share samples and information. Creating such a […]

Open data access is regulated access

We usually associate open access with the publication of scientific articles that anyone with internet access can read, without price barrier. The concept “open access” is now being used also for research data. I have written about this trend towards open data earlier on the Ethics Blog: Openness as a norm. In many cases, research […]

Bioethicists suggest broad consent for biobank research

It is still unclear what kind of consent should be used when collecting biological samples for future research. Different forms of consent are practiced, which creates another uncertainty: which research is actually permitted with the collected samples? This haphazard situation leads to unintended constraints on research. But it also leads to research sometimes being carried […]

Open research platforms and open data

Today, I recommend reading about two major changes in current research. Both changes are reflected in the December issue of the newsletter: Biobank Sweden: the newsletter of The changes concern researchers’ relation to their material. The first change has been discussed on the Ethics Blog. It is that samples and data that individual research […]

Building European infrastructures for research

The European Union is traditionally about creating an internal market, where goods, services, labor and capital can move freely between member states. Lately there have been efforts to create also European infrastructures for research, where researchers in the different member states can collaborate more efficiently, and compete on a global “research market.” A new tool […]

Open biobank landscapes

Last week I wrote about the transition from organizing science as a tree of knowledge that once in a while drops its fruits onto society, to organizing research as part of knowledge landscapes, where the perspective of harvesting, managing and using the fruits is there from the beginning. That the proud tree is gone might […]

Overview of the regulatory framework of European biobanking

Unless you have an education in law, it is almost impossible to find your way through the regulatory landscape of European biobanking, or to understand the motives behind the proposed new general data protection regulation. However, a helpful overview and discussion can be found in this article by Evert-Ben van Veen: “Europe and tissue research: […]

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