The Ethics Blog

A research blog from the Centre for Resarch Ethics & Bioethics (CRB)

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Political ambitions threaten the intellectual integrity of bioethics

Is there a need to enhance the way bioethicists discuss enhancement? Contemporary ethical debates on human enhancement sometimes resemble bitter political debates in a city council. Implicit or explicit political agendas are expressed as normative claims and are passed as “moral” arguments because they serve “the right cause.” Consider, for instance, James Watson who said […]

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Bioethics is not a community of interests

There is a persistent image of bioethics as being in symbiosis with the powerful interests of medical research and the pharmaceutical industry. Examples that could confirm such suspicions multiply, unfortunately, since pharmaceutical companies have begun to hire bioethicists as consultants. After critique, Glenn McGee, the former editor of the American Journal of Bioethics, recently resigned […]

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Personalized medicine against the diabetes epidemic?

When promising technologies see the light, it can be difficult to make sound predictions about their future utility. Technical breakthroughs that promise to transform society tend to bewitch the mind. Their tremendous potential begs for interpretation by more dreamlike imaginary powers. When nuclear power was young, for example, the impact this new technology promised to have on […]

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The Swedish government announced new rules for research registers

Will new Swedish rules for research registers enable LifeGene to continue? In December 2011, the Swedish Data Inspection Board (DI) decided that the large biobank investment LifeGene is against the law. In its motivation, DI focused on the purpose of the data collection and the information to participants about this purpose. According to DI, LifeGene’s purpose […]

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Researchers’ opinions about communication of results of biobank research

One of the ethical difficulties that confront biobank and genomics research concerns the communication of results to participants. Should biobank participants be given feedback from research? If so, under what conditions? A recent article in the European Journal of Human Genetics reports a survey of Dutch biobank researchers’ opinions on the issue. Here are some […]

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