Viewing neuroscience as a box opener is tempting. The box conceals the human mind; opening the box reveals it. According to this image, neuroscience uncovers reality. It lays bare the truth about our taken for granted notions of mind: about our concepts of ‘self,’ ‘will,’ ‘belief,’ ‘intention’… Neuroscience reveals the underlying facts about us humans. How […]
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Tearing down old buildings and erecting new ones on the basis of modern science and technology – we are constantly doing it in our cities. But can similar ambitions to get rid of the old, to modernize, be realized even more thoroughly, with regard to us and the human condition? Can we tear down “traditional” […]
Continue readingLast week I blogged about the unique status that personal data have in science. Researchers are not interested in the persons behind the data and they have no intention of returning to them; an intention that most other personal data collectors have. In an age of increasing integrity threats, it is uplifting that biobanks and […]
Continue readingIt is perplexing how the websites of large internet companies continuously adapt to me. It looks like the entire business activity of Amazon was about the musical artists I listened to yesterday. These companies evidently collect data about what I search out on their websites and automatically adapt to my computer, making the presentation of […]
Continue readingIf you wrestle with ethical and legal difficulties associated with genetic science, a recent virtual issue of the Hastings Center Report could be good to think with. The issue collects earlier material on ethics and genetics. There are pieces about the perils of genetic-specific legislation; about the difficulties of understanding behavioral genetics; about the prospects of […]
Continue readingI have the privilege of belonging to a group of ethicists and law scholars that currently discuss how to visualize ethical and legal dimensions of biobanking. We organize an interactive part of the scientific conference program for HandsOn: Biobanks in September. The conference invites participants to Uppsala to explore the values of biobanking and to […]
Continue readingAfter many years of data collection, UK Biobank is now open for research on human health and disease. Like the Swedish biobank investment LifeGene, the British investment is big and prospective. Blood and urine samples were collected from 500 000 participants aged 40-69. Participants also underwent medical examinations and answered questions about health, disease and lifestyle. […]
Continue readingIs there a need to enhance the way bioethicists discuss enhancement? Contemporary ethical debates on human enhancement sometimes resemble bitter political debates in a city council. Implicit or explicit political agendas are expressed as normative claims and are passed as “moral” arguments because they serve “the right cause.” Consider, for instance, James Watson who said […]
Continue readingAs a philosopher, I am familiar with the image of the solitary thinker who studies the human mind though introspective study of his own. A recent article in the journal Cell reminds me of that image, but in unexpected “genomic” guise. To achieve statistical significance, medical researchers typically engage large numbers of research subjects. The […]
Continue readingThere is a persistent image of bioethics as being in symbiosis with the powerful interests of medical research and the pharmaceutical industry. Examples that could confirm such suspicions multiply, unfortunately, since pharmaceutical companies have begun to hire bioethicists as consultants. After critique, Glenn McGee, the former editor of the American Journal of Bioethics, recently resigned […]
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