Patients seem more willing to participate in biobank research than the general public. A possible explanation is the doctor-patient relationship. Patients’ trust in health care professionals might help doctors to recruit them as research participants, perhaps making the task too easy. That trust in doctors can induce a willingness to participate in research seems threatening […]
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One of my colleagues here at CRB, Kathinka Evers, recently returned from Barcelona, where she participated in the lecture series, The Origins of the Human Mind: PS: Why did you participate in this series? KE: I was invited by the Centre for Contemporary Culture to present the rise of neuroethics and my views on informed […]
Continue readingWhat do researchers owe participants in biobank research? One answer is that researchers should share relevant incidental findings about participants with these helpful individuals. Returning such information could support a sense of partnership and acknowledge participants’ extremely valuable contribution to research. I’m doubtful about this answer, however. I’m inclined to think that return of information […]
Continue readingViewing neuroscience as a box opener is tempting. The box conceals the human mind; opening the box reveals it. According to this image, neuroscience uncovers reality. It lays bare the truth about our taken for granted notions of mind: about our concepts of ‘self,’ ‘will,’ ‘belief,’ ‘intention’… Neuroscience reveals the underlying facts about us humans. How […]
Continue readingTearing down old buildings and erecting new ones on the basis of modern science and technology – we are constantly doing it in our cities. But can similar ambitions to get rid of the old, to modernize, be realized even more thoroughly, with regard to us and the human condition? Can we tear down “traditional” […]
Continue readingLast week I blogged about the unique status that personal data have in science. Researchers are not interested in the persons behind the data and they have no intention of returning to them; an intention that most other personal data collectors have. In an age of increasing integrity threats, it is uplifting that biobanks and […]
Continue readingIt is perplexing how the websites of large internet companies continuously adapt to me. It looks like the entire business activity of Amazon was about the musical artists I listened to yesterday. These companies evidently collect data about what I search out on their websites and automatically adapt to my computer, making the presentation of […]
Continue readingIf you wrestle with ethical and legal difficulties associated with genetic science, a recent virtual issue of the Hastings Center Report could be good to think with. The issue collects earlier material on ethics and genetics. There are pieces about the perils of genetic-specific legislation; about the difficulties of understanding behavioral genetics; about the prospects of […]
Continue readingI have the privilege of belonging to a group of ethicists and law scholars that currently discuss how to visualize ethical and legal dimensions of biobanking. We organize an interactive part of the scientific conference program for HandsOn: Biobanks in September. The conference invites participants to Uppsala to explore the values of biobanking and to […]
Continue readingAfter many years of data collection, UK Biobank is now open for research on human health and disease. Like the Swedish biobank investment LifeGene, the British investment is big and prospective. Blood and urine samples were collected from 500 000 participants aged 40-69. Participants also underwent medical examinations and answered questions about health, disease and lifestyle. […]
Continue readingTHE ETHICS BLOG
A research blog from the Centre for Research Ethics & Bioethics (CRB)
We write for researchers, healthcare staff, officials, politicians, patient organisations and anyone interested in ethics.
We comment on the research ethics and bioethics debate and discuss our own research. We address issues from current debates in the research community and in the press.
MEET THE EDITOR
Pär Segerdahl is editor of the Ethics Blog and Associate Professor of Philosophy at the Centre for Research Ethics & Bioethics.