The Ethics Blog

A research blog from the Centre for Resarch Ethics & Bioethics (CRB)

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Letting people choose isn’t always the same as respecting them

Sequencing the entire genome is cheaper and faster than ever. But when researchers look at people’s genetic code, they also find unexpected information in the process. Shouldn’t research participants have access to this incidental information? Especially if it is important information that could save a life if there is treatment to offer? The personal benefits […]

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The Swedish Data Protection Authority rejects extension of temporary law on registry research

Since the new Swedish law on research databases is delayed, there is a proposal to extend the current temporary law on certain registries for research about what heredity and environment mean for human health (until December 31, 2017). The Swedish Data Protection Authority rejects extension, because major deficiencies noted previously have not been addressed and […]

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Neuroethics: new wine in old bottles?

Neuroscience is increasingly raising philosophical, ethical, legal and social problems concerning old issues which are now approached in a new way: consciousness, freedom, responsibility and self are today investigated in a new light by the so called neuroethics. Neuroethics was conceived as a field deserving its own name at the beginning of the 21st century. […]

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Is it ethical that uninformed members of the public decide just how bad your disability is? (By Terry Flynn)

Last time I raised the possibility of changing child health policy because teenagers are more likely than adults to view mental health impairments as being the worst type of disability. However, today I consider adults only in order to address a more fundamental issue. Imagine you had an uncommon, but not rare, incurable disease that […]

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Being humans when we are animals

Most people know that humans are animals, a primate species. Still, it is difficult to apply that knowledge directly to oneself: “I’m an animal”; “My parents are apes.” – Can you say it without feeling embarrassed and slightly dizzy? In a recent paper I explore this difficulty of “bringing home” an easily cited scientific fact: […]

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Moody teenagers? Giving them a greater say in health policy might solve this (By Terry Flynn)

We have all heard of moody teenagers. Maybe we have them, or can remember being one. Recent research with my Australian colleagues suggests they may genuinely have more difficulty living with poor mental health than adults do. Specifically, compared to the general public aged 18+, they are more likely to view mental health related impairments […]

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Openness as a norm

Why should scientists save their code keys as long as 20 years after they conducted their study, the Swedish Data Inspection Board apparently wonders. In its opinion to a proposed new Swedish law on research databases, it states that this seems too long a period of time. Yet, researchers judge that code keys need to […]

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