The Ethics Blog

A research blog from the Centre for Resarch Ethics & Bioethics (CRB)

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Where is consciousness?

  Would it be possible to use brain imaging techniques to detect consciousness and then “read” directly in people’s brains what they want or do not want? Could one, for example, ask a severely brain injured patient for consent to some treatment, and then obtain an answer through a brain scan? Together with the philosopher […]

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Letting people choose isn’t always the same as respecting them

Sequencing the entire genome is cheaper and faster than ever. But when researchers look at people’s genetic code, they also find unexpected information in the process. Shouldn’t research participants have access to this incidental information? Especially if it is important information that could save a life if there is treatment to offer? The personal benefits […]

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The Swedish Data Protection Authority rejects extension of temporary law on registry research

Since the new Swedish law on research databases is delayed, there is a proposal to extend the current temporary law on certain registries for research about what heredity and environment mean for human health (until December 31, 2017). The Swedish Data Protection Authority rejects extension, because major deficiencies noted previously have not been addressed and […]

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Neuroethics: new wine in old bottles?

Neuroscience is increasingly raising philosophical, ethical, legal and social problems concerning old issues which are now approached in a new way: consciousness, freedom, responsibility and self are today investigated in a new light by the so called neuroethics. Neuroethics was conceived as a field deserving its own name at the beginning of the 21st century. […]

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Is it ethical that uninformed members of the public decide just how bad your disability is? (By Terry Flynn)

Last time I raised the possibility of changing child health policy because teenagers are more likely than adults to view mental health impairments as being the worst type of disability. However, today I consider adults only in order to address a more fundamental issue. Imagine you had an uncommon, but not rare, incurable disease that […]

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