Now you can read the second newsletter this year from CRB and BBMRI.se: Biobank perspectives: current issues in biobank ethics and law The newsletter contains four news items: 1. Anna-Sara Lind presents a new book, Information and Law in Transition, and the contributions to the book by CRB researchers. 2. Anna-Sara Lind describes the situation […]
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Would it be possible to use brain imaging techniques to detect consciousness and then “read” directly in people’s brains what they want or do not want? Could one, for example, ask a severely brain injured patient for consent to some treatment, and then obtain an answer through a brain scan? Together with the philosopher […]
Continue readingResearchers, scientists and professionals who are somehow involved in research, need to develop an ability to detect ethical problems. But we also need to learn how to do something about them. – How can we learn? The Centre for Research Ethics & Bioethics (CRB) has developed a web-based training in research ethics. And now we are […]
Continue readingOn a daily basis, we are informed about risks. The media tell us that obesity increases the risk of cardiovascular diseases and that we can reduce the risk of Alzheimers by eating the right kind of food. We are confronted with the potential danger of nanoparticles and mobile phone radiation. Not to mention the never […]
Continue readingSequencing the entire genome is cheaper and faster than ever. But when researchers look at people’s genetic code, they also find unexpected information in the process. Shouldn’t research participants have access to this incidental information? Especially if it is important information that could save a life if there is treatment to offer? The personal benefits […]
Continue readingSince the new Swedish law on research databases is delayed, there is a proposal to extend the current temporary law on certain registries for research about what heredity and environment mean for human health (until December 31, 2017). The Swedish Data Protection Authority rejects extension, because major deficiencies noted previously have not been addressed and […]
Continue readingIt is natural to think that a child, who learns to speak, learns precisely that: simply to speak. And a child who learns addition learns precisely that: simply to add. But is speaking “simply speaking” and is adding “simply adding”? Imagine a very young child who is beginning to say what its parents recognize as […]
Continue readingExperts on assignment in the real world cease in part to be experts. Just consider computer experts who create a computer system for the tax authorities, or for a bank, or for a hospital. In order for these systems to work on location, the computer experts need to be open to what they don’t know […]
Continue readingNeuroscience is increasingly raising philosophical, ethical, legal and social problems concerning old issues which are now approached in a new way: consciousness, freedom, responsibility and self are today investigated in a new light by the so called neuroethics. Neuroethics was conceived as a field deserving its own name at the beginning of the 21st century. […]
Continue readingLast time I raised the possibility of changing child health policy because teenagers are more likely than adults to view mental health impairments as being the worst type of disability. However, today I consider adults only in order to address a more fundamental issue. Imagine you had an uncommon, but not rare, incurable disease that […]
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