The brain develops dramatically during childhood. These neural changes occur in the child’s interaction with its environment. The brain becomes a brain that functions in the culture in which it develops. If a child is mistreated, if it is deprived of important forms of interaction, like language and care, the brain is deprived of its […]
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To communicate about genetic risk with patients, we need to know how people think about risk and that experts and people in general often think differently. A common feature, however, is this: Risk has to do with future adverse events. We talk about the risk of getting sick. But we rarely talk about the risk […]
Continue readingWe all think patients’ voices are important. But how do we make sure we listen to the right ones? Patient engagement and patient perspectives have come into focus in health care in recent years. Though this is especially true for the clinical setting, this development can be expected to continue for decision-makers at other levels. […]
Continue readingAbout thirty-five years ago, Stephen Toulmin wrote an article on the topic: How medicine saved the life of ethics. I think it is still worth reading. Toulmin argued roughly as follows: During the first six decades of the 1900s, ethics wasn’t feeling well at all. One might say that it suffered from moral aphasia: it […]
Continue readingPublic health campaigns do to some extent infringe upon our lives. Maybe we are prepared to allow some of these intrusions. We protest a little, just for show, but still adopt the message and begin to think that we probably ought to eat a little more X and a little less Y. Some campaigns, however, […]
Continue readingIf you did not get your fill during the Europe biobank week in Vienna, we give you more biobank related news in the latest issue of Biobank Perspectives, our newsletter on current issues in biobank ethics and law. This time, Moa Kindström Dahlin describes what BBMRI-ERIC’s new federated Helpdesk for ELSI-issues can offer. We also […]
Continue readingCritically ill patients sometimes have such a poor prognosis that cardiopulmonary resuscitation for cardiac arrest (CPR) would not help. They are so weak that they would not survive the treatment. If they survive, they do so with even poorer quality of life. The physician can then write a so-called DNR decision, which means that CPR […]
Continue readingAt CRB we seek new ways to study how people respond to health information, especially risk information, and how they make trade-offs between risks and benefits. We are right now looking for a PhD student who can work in one of these projects. The task involves both qualitative and quantitative work, including so-called Discrete Choice […]
Continue readingResearch ethics is complex and requires considering issues from several perspectives simultaneously. I’ve written about the temptation to reduce research ethics to pure protection ethics. Then not as much needs to be kept in mind. Protection is the sole aim, and thinking begins to resemble the plot of an adventure film where the hero finally […]
Continue readingWhat a joy it is to read a real philosopher! This summer I read David Hume and was puzzled by this question: Why is Hume so stimulating to read, when the experts’ comments to his philosophical system are so tedious? If the system is what’s important, shouldn’t the exposition of the system by knowledgeable commentators […]
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