Biobank and registry research comes with particular sets of legal and ethical issues. We explore some of them in our Biobank Perspectives newsletter. In this issue, you can read about some of the challenges that arise when biobanking stem cells in relation to a new project on the legal and ethical aspects of using stem […]
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Stem cells are perhaps not what first springs to mind as biobank material. Yet, even stem cells can be biobank material and there are biobanks that focus on stem cells. The use of this biobank material, however, has some unique features. Stem cell researchers process not only data from human material. The material itself is […]
Continue readingThere is a picture of stem cell therapy: It is in harmony with the body’s own way of functioning. Damaged tissue is regenerated as the body always regenerates tissue: through stem cells maturing into new body cells. Patients can then hope for a body without a trace of disease: a healed body that takes care […]
Continue readingIn a previous post, I tried to make the point that the pharmaceutical industry can support altruism between research participants and patients, despite the fact that the industry itself is not altruistic but is driven by profit. Medical research will not benefit patients, unless results are developed into commercially available treatments. However, this presupposes, of […]
Continue readingWhen fraudulent “academic” journals publish articles without proper peer review. When websites online spread fake information. When politicians talk about alternative facts. Then undeniably, one feels a need for a general tightening up. A possible problem in this reaction is that we castrate ourselves. That we don’t dare to propose and discuss ideas about the […]
Continue readingMuch debated issues tend to be about how we should view important matters that are also multi-faceted. The school system is important. But there are many ways of thinking about the importance of education; many ways of reasoning about how it should be designed to carry out the important tasks that we think it has. […]
Continue readingI am currently thinking about a common gut reaction to the pharmaceutical industry. I sometimes have this reaction too, so this is an examination of my own reaction. The reaction is a feeling of discomfort, when a central actor in the management of something as important as human health and disease is a multibillion-dollar industry […]
Continue readingMany people support in various ways medical research, which they perceive as urgent in view of the needs of various patient groups. But patients typically won’t benefit from research unless the results are translated into development of medical products. Type 1 diabetes is an incurable disease that requires daily life-sustaining treatment and strict dietary rules. […]
Continue readingWe live in a global society, which means there are several actors that regulate both research and services directed at consumers. It is time again for our newsletter on current issues in biobank ethics and law. This time, Biobank Perspectives lets you read about the legal aspects of direct-to-consumer genetic testing. Santa Slokenberga writes about […]
Continue readingOur neuroethics group at CRB currently seek two postdoctoral researchers to work in the Human Brain Project (European Commission Future and Emerging Technologies Flagship Project). The positions have different focus. One research task focuses on the role of contexts and cultural imprinting in understanding the brain’s functional architectures. Read more and apply. The second research […]
Continue readingTHE ETHICS BLOG
A research blog from the Centre for Research Ethics & Bioethics (CRB)
We write for researchers, healthcare staff, officials, politicians, patient organisations and anyone interested in ethics.
We comment on the research ethics and bioethics debate and discuss our own research. We address issues from current debates in the research community and in the press.
MEET THE EDITOR
Pär Segerdahl is editor of the Ethics Blog and Associate Professor of Philosophy at the Centre for Research Ethics & Bioethics.