The Ethics Blog

A blog from the Centre for Research Ethics & Bioethics (CRB)

Month: March 2015

Is it ethical that uninformed members of the public decide just how bad your disability is? (By Terry Flynn)

Last time I raised the possibility of changing child health policy because teenagers are more likely than adults to view mental health impairments as being the worst type of disability. However, today I consider adults only in order to address a more fundamental issue. Imagine you had an uncommon, but not rare, incurable disease that […]

Being humans when we are animals

Most people know that humans are animals, a primate species. Still, it is difficult to apply that knowledge directly to oneself: “I’m an animal”; “My parents are apes.” – Can you say it without feeling embarrassed and slightly dizzy? In a recent paper I explore this difficulty of “bringing home” an easily cited scientific fact: […]

Moody teenagers? Giving them a greater say in health policy might solve this (By Terry Flynn)

We have all heard of moody teenagers. Maybe we have them, or can remember being one. Recent research with my Australian colleagues suggests they may genuinely have more difficulty living with poor mental health than adults do. Specifically, compared to the general public aged 18+, they are more likely to view mental health related impairments […]

Openness as a norm

Why should scientists save their code keys as long as 20 years after they conducted their study, the Swedish Data Inspection Board apparently wonders. In its opinion to a proposed new Swedish law on research databases, it states that this seems too long a period of time. Yet, researchers judge that code keys need to […]

Biobank news

The first newsletter for 2015 from CRB and BBMRI.se is now available for reading: Biobank perspectives: current issues in biobank ethics and law The main news item, by Anna-Sara Lind, is about the still unclear status for a new European data protection regulation (intended to replace the old directive). You’ll also find items by Josepine […]