Hearsay and good intentions won’t suffice. If a new treatment is chosen for a patient with cancer, one must first have seen that the treatment is at least as efficient as the conventional treatment. And one must have looked at side effects and right dosages. Seeing this, however, presupposes that some patients agree to test the […]
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Embryonic stem cell research can find effective treatments for a wide range of currently untreatable diseases. No wonder embryonic stem cell research can be perceived as an important practice. A human embryo can develop into someone’s child, who breathes, talks and lives. No wonder embryonic stem cell research can be perceived as a controversial practice. […]
Continue readingToday I recommend three short and instructive readings on biobanking: The European Parliament voted in October 2013 on an amended proposal for a new European Data Protection Regulation. In a newsletter from CBR and BBMRI.se, the legal scholars Jane Reichel and Anna-Sara Lind explain implications for biobank research: Biobank perspectives: current issues on biobank ethics […]
Continue readingIt is hard to understand and explain why new biotechnologies often are so upsetting. I am inclined to think that many people accord a special value to nature and to what is considered natural. This stance is held in spite of the fact that human beings have purposively modified nature, e.g., through the selection of […]
Continue readingThe words “human” and “inhuman” are often used as moral judgments. For example: reasoning is (brilliantly) human; violence is (terribly) inhuman. Such forms of speech are perfectly in order. Yet, we easily go astray if we use the same forms of speech in attempts to diagnose war and conflict, or the path to peace. (Which […]
Continue readingI return to the question in my previous post. I was wondering why biotechnological developments repeatedly invite moral responses in terms of borders that shouldn’t be transgressed by humans. (Think of stem cell research using human embryos.) What is fundamental in these responses? Is it the absolute border? Do people already have stable notions of borders […]
Continue readingArtificial insemination, genetically modified organisms, and attempts in synthetic biology to create artificial life have this in common: they tend to provoke moral responses in terms of borders that should not be transgressed. A recent article by Thomas Douglas, Russell Powell, and Julian Savulescu discusses synthetic biology from this point of view: Is the creation […]
Continue readingThere are two tempting pictures of the human. One is that we (ideally) are autonomous individuals who make rational choices on the basis of information. The other picture is that our individuality is coded in our DNA. These pictures work in tandem in the marketing of direct-to-consumer genetic testing. The website of the personal genomics […]
Continue readingImportant words easily become totalitarian. They begin with communicating some humanly important point, so we listen with attention. But then it is as if the words suffered from vanity and assumed that our attention was directed at them; not at what they were used to say. Over time, the words become like grammatical codes of […]
Continue readingAt the Centre for Research Ethics and Bioethics in Uppsala, we have since the 1990s been studying the ethics of biobank and registry-based research. If you are interested to see what we have done in this field, you can find a recently updated list of our publications by clicking the link below: Biobank and Registry […]
Continue readingTHE ETHICS BLOG
A research blog from the Centre for Research Ethics & Bioethics (CRB)
We write for researchers, healthcare staff, officials, politicians, patient organisations and anyone interested in ethics.
We comment on the research ethics and bioethics debate and discuss our own research. We address issues from current debates in the research community and in the press.
MEET THE EDITOR
Pär Segerdahl is editor of the Ethics Blog and Associate Professor of Philosophy at the Centre for Research Ethics & Bioethics.