When a critically ill patient has such a poor prognosis that resuscitation would be of no use, doctors can write a so-called do not resuscitate order. The decision means that if the heart stops beating, the medical team should not, as otherwise, perform coronary pulmonary rescue. The decision is made by the physician on the […]
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Biomedical research does not always require research subjects who are prepared to experimentally try new treatments or diets. Increasingly, research on health and disease is carried out on stored biological samples and personal data in different registries. Handling human biological material and personal data raises unique ethical issues. People who volunteer as participants in such […]
Continue readingThere is a prevalent idea that moral considerations presuppose ethical principles. But how does it arise? It makes our ways of talking about difficult issues resemble consultations between states at the negotiating table, invoking various solemn declarations: “Under the principle of happy consequences, you should lie here; otherwise, many will be hurt.” “According to the […]
Continue readingThe European Union is traditionally about creating an internal market, where goods, services, labor and capital can move freely between member states. Lately there have been efforts to create also European infrastructures for research, where researchers in the different member states can collaborate more efficiently, and compete on a global “research market.” A new tool […]
Continue readingLast week I wrote about the transition from organizing science as a tree of knowledge that once in a while drops its fruits onto society, to organizing research as part of knowledge landscapes, where the perspective of harvesting, managing and using the fruits is there from the beginning. That the proud tree is gone might […]
Continue readingScience was long revered as free and self-critical pursuit of knowledge. There were hopes of useful applications, of course, but as fruits that once in a while fall from the tree of knowledge. In a thought-provoking article in the Croatian Medical Journal, Anna Lydia Svalastog describes how traditional reverence for science and devout hope of […]
Continue readingDuring the seminar this week we discussed an elusive concept. The concept is supposed to be about ordinary people, but it is a concept that ordinary people hardly use about themselves. We talked about autonomy, which is a central notion in ethical discussions about how patients and research participants should be treated. They should be […]
Continue readingThe second issue of the newsletter from CRB and BBMRI.se is now available: Biobank perspectives: current issues in biobank ethics and law This April issue contains four interesting news items about: New international research cooperation on genetic risk information. The new Swedish law on registers for research on heritage, environment and health. The legislative process […]
Continue readingPhilosophy has an aura of pretentiousness. Philosophers seem to make such ambitious claims about the essence of everything. About morality, about mind, about language… usually without doing any empirical research! From where do they derive their claims? Are they sitting in armchairs just awaiting “truths” from out of nowhere? Is philosophy a form of “easy science” […]
Continue readingPreconception genetic carrier tests can inform a person if he/she is carrier of a recessive disease. In case the partner is also a carrier of the same disease, the couple has an increased risk (usually a 1 in 4 risk) to have a child with this disease. Current research in genetics works on developing tests […]
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