The Ethics Blog

A research blog from the Centre for Resarch Ethics & Bioethics (CRB)

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Our publications on biobanks and registries

Biomedical research does not always require research subjects who are prepared to experimentally try new treatments or diets. Increasingly, research on health and disease is carried out on stored biological samples and personal data in different registries. Handling human biological material and personal data raises unique ethical issues. People who volunteer as participants in such […]

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Intellectualizing morality

There is a prevalent idea that moral considerations presuppose ethical principles. But how does it arise? It makes our ways of talking about difficult issues resemble consultations between states at the negotiating table, invoking various solemn declarations: “Under the principle of happy consequences, you should lie here; otherwise, many will be hurt.” “According to the […]

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Open biobank landscapes

Last week I wrote about the transition from organizing science as a tree of knowledge that once in a while drops its fruits onto society, to organizing research as part of knowledge landscapes, where the perspective of harvesting, managing and using the fruits is there from the beginning. That the proud tree is gone might […]

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Perplexed by autonomy

During the seminar this week we discussed an elusive concept. The concept is supposed to be about ordinary people, but it is a concept that ordinary people hardly use about themselves. We talked about autonomy, which is a central notion in ethical discussions about how patients and research participants should be treated. They should be […]

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Biobank news: ethics and law

The second issue of the newsletter from CRB and BBMRI.se is now available: Biobank perspectives: current issues in biobank ethics and law This April issue contains four interesting news items about: New international research cooperation on genetic risk information. The new Swedish law on registers for research on heritage, environment and health. The legislative process […]

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The claim of thoughtfulness

Philosophy has an aura of pretentiousness. Philosophers seem to make such ambitious claims about the essence of everything. About morality, about mind, about language… usually without doing any empirical research! From where do they derive their claims? Are they sitting in armchairs just awaiting “truths” from out of nowhere? Is philosophy a form of “easy science” […]

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