The Ethics Blog

A blog from the Centre for Research Ethics & Bioethics (CRB)

Month: April 2014

Perplexed by autonomy

During the seminar this week we discussed an elusive concept. The concept is supposed to be about ordinary people, but it is a concept that ordinary people hardly use about themselves. We talked about autonomy, which is a central notion in ethical discussions about how patients and research participants should be treated. They should be […]

Biobank news: ethics and law

The second issue of the newsletter from CRB and is now available: Biobank perspectives: current issues in biobank ethics and law This April issue contains four interesting news items about: New international research cooperation on genetic risk information. The new Swedish law on registers for research on heritage, environment and health. The legislative process […]

The claim of thoughtfulness

Philosophy has an aura of pretentiousness. Philosophers seem to make such ambitious claims about the essence of everything. About morality, about mind, about language… usually without doing any empirical research! From where do they derive their claims? Are they sitting in armchairs just awaiting “truths” from out of nowhere? Is philosophy a form of “easy science” […]

Genetic compatibility as a new dimension of partnership? (By Julia Inthorn)

Preconception genetic carrier tests can inform a person if he/she is carrier of a recessive disease. In case the partner is also a carrier of the same disease, the couple has an increased risk (usually a 1 in 4 risk) to have a child with this disease. Current research in genetics works on developing tests […]

Better not to know? (by Mirko Ancillotti)

In medical ethics a distinction is commonly made between negative and positive autonomy. One’s negative autonomy is exercised in refusing medical care or refusing some specific treatment. Positive autonomy is the right to choose a specific treatment (within what is available and allowed). Expressing a preference for not being informed about some medical condition seems […]

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