Millions of Taiwanese biobank samples might soon be destructed bacause of lack of participant consent. Read more here. This illustrates the topic I introduced in my previous blog post, Research ethics in a new situation. The ethical regulation introduced last year in Taiwan was intended to protect human subjects who provided samples to biobanks. But […]
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Let me introduce a topic that will be recurrent on this blog! It is the question whether research ethics and the practices of ethical review can give rise to their own ethical problems. Do we create new ethical problems while we handle old ones? Research ethics developed in a different situation than our present one. […]
Continue readingIn a comment on our Swedish blog (Etikbloggen), Joanna Forsberg asks if her integrity can be breached if a sample that she donated to a biobank is anonymized (so that it cannot be traced to her) and then is reused in new biobank research. Since the sample is not traceable to her, no one can […]
Continue readingIf you are writing on animal welfare, you may one day cite Savage-Rumbaugh, Wamba, Wamba and Wamba (2007). If you do, you will have cited one human and three captive bonobos. I cited them last month, presenting a paper at the symposium, “Zoo-ethnographies,” arranged by the Centre for Gender Research in Uppsala. Citing them felt […]
Continue readingTwo American physicians recently wrote in the New England Journal of Medicine about how they were forced back to school again learning another foreign language. In medical school they learned that measles was called rubeola and itching pruritus. Today they learn that patient is called “customer” (or “consumer”) while doctor and nurse both are called […]
Continue readingWhen my blood sample is reused in biobank research, perhaps 5-10 years after I gave it, do I then become a research subject who must be informed about the new research project and give my assent before the sample is used? The question arises when I read Joanna Forsberg’s article in BMJ on biobank research […]
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