The Ethics Blog

A blog from the Centre for Research Ethics & Bioethics (CRB)

Month: January 2015

Bioethics behind the facade: research and new thinking

The finished result easily becomes a picture of the process of achieving it. For example: We hear a Beethoven symphony and think that the genius had this magnificent composition in his head. He just needed to write it down. As if the result existed from the beginning and only needed to be put on paper. […]

Rare diseases need international research infrastructure

There are a few thousand diseases that you never heard the name of. They affect so few people and have no names in the common language. These diseases are usually called rare diseases (or orphan diseases). They often (but not always) have genetic origin. They often affect children, are disabling and can even be life-threatening, and […]

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