The Ethics Blog

A blog from the Centre for Research Ethics & Bioethics (CRB)

Month: May 2012

I want to contribute to research, not subscribe to genetic information

What do researchers owe participants in biobank research? One answer is that researchers should share relevant incidental findings about participants with these helpful individuals. Returning such information could support a sense of partnership and acknowledge participants’ extremely valuable contribution to research. I’m doubtful about this answer, however. I’m inclined to think that return of information […]

Do I have a self?

Viewing neuroscience as a box opener is tempting. The box conceals the human mind; opening the box reveals it. According to this image, neuroscience uncovers reality. It lays bare the truth about our taken for granted notions of mind: about our concepts of ‘self,’ ‘will,’ ‘belief,’ ‘intention’… Neuroscience reveals the underlying facts about us humans. How […]

Can neuroscience modernize human self-understanding?

Tearing down old buildings and erecting new ones on the basis of modern science and technology – we are constantly doing it in our cities. But can similar ambitions to get rid of the old, to modernize, be realized even more thoroughly, with regard to us and the human condition? Can we tear down “traditional” […]

Research before health care

Last week I blogged about the unique status that personal data have in science. Researchers are not interested in the persons behind the data and they have no intention of returning to them; an intention that most other personal data collectors have. In an age of increasing integrity threats, it is uplifting that biobanks and […]

Research with my data, but not about me

It is perplexing how the websites of large internet companies continuously adapt to me. It looks like the entire business activity of Amazon was about the musical artists I listened to yesterday. These companies evidently collect data about what I search out on their websites and automatically adapt to my computer, making the presentation of […]

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